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Message Board > Methadone > My Taper Story


Posted by: Chronicpain September 1, 2019, 10:53 AM
16 years on 40mg methadone from doctor as chronic pain patient.

Stable for many years, though age aches & pains (arthritis) along w fatigue, low level depression —- lots of Advil on top of methadone.

Within the last year, doc says she must now reduce dosage to 20mg due to new regulations.

Although methadone has worked well, I experienced monthly stress including “she’s on vacation” struggle to get med renewed. Always a stressful day waiting for the renewal—month after month, year after year.

She also has hundreds of new patients. She doesn’t do much than use google, web md, and writes critics she’s not healthy, herself.

When taken down quickly from 40 mg to 20mg, 2 things happened:

Insomnia

Going to the bathroom up to 9 times a day, easing to 5 or 6, for months.

I collapsed on a Sunday and again on Wednesday and ended up in ER.

Cardiologist said it was likely heart attack.

He said he didn’t want to be quoted but with my I’ll health, weight & horrific family history, he gave strange recommendation.

He recommended I drop sugar and eat high fat diet.

I have done “heart healthy” for years and have gained and lost weight.

I did research.

I gave it a try.

Bacon, eggs & sausage every morning. Fish, chicken, steak, pork, lard, tallow etc and lots of local in season vegetables.

No sugar and I dropped all processed foods (sugar is added)

I lost weight like water —50 lbs in a few months.

I increased salt (natural only)

Weird results:

-no more type 2 diabetes
-no more high blood pressure

But weirdest thing was I dropped Advil and one day realized that my pain, something I’ve known from age 35 for more than 20 years was gone.

I stopped playing musical instrument due to arthritis in 2013. I lost the weight by eating like my grandparents did but couldn’t exercise.

When I saw pain was gone I began exercise. I went from needing help to take off a t shirt to doing pull ups.

Depression gone.

I never knew how sugar (“...cose”) impacted the brain causing 2 hour fluctuations so much related to depression and anxiety!

I also didn’t know that sneaky food company scientists added sugar to everything. (Even Morton salt!) and the damage of inflammation.

I’ve even returned to competitive sports st my age!

Doc not pleased.



I began my own weaning saving extra tablets (5mg) to break up and do a soft landing taper. Over fifty & Mojo have inspired me.

I’ve been terrified of running out of medicine for 16 years. Had only she (or I) knew something about nutrition! (She’s obese)

Before that, I had been in pain centers for years. No one ever asked what I ate.

I never did street drugs—likely because I had no access to them otherwise I would have medicated the pain & depression with them.

I am no longer afraid of tapering off.

Breaking up tablets I hope to have tiny chip of about .5mg per day.

After stable, I’ll skip 1 day per week. Then I’ll skip 2 days per week, and so on.

I wish that others had a home supply in order to be in control of their taper.

Posted by: Overfifty55 September 3, 2019, 10:15 AM
Good morning Chronicpain:). Your taper plan sounds really good. Tapering slowly is the way to go IMO. We have a lot of similarities in our journey. I’m 57 and do keto. I had to chuckle when you were describing the breakfasts you eat. I eat the same way. Sugar is the devil for sure. Anyways I too saved extra medication in case I couldn’t get it anymore. It’s sad that you have to worry about that. Had I not of done that I would of been given 3months to detox off of 30ml. I have detoxed off of 80ml in 80 days but it didn’t last. But I will say that even then the symptoms were tolerable. But it dragged on and on and it mentally got tough. I went to the doctor for help and got it. Hopefully your able to have your doctor help you if you need it. Clonadine was a life saver. It calmed me down and helped relax me. I was so afraid to make that jump but when I did it was so easy. I was at about 1mg for two days when I jumped. I was taking crumbs but it helped me I believe to have an easy time with jumping. Your doing amazing with this taper. Keep on doing what you’ve been doing. Have a great Tuesday............peace

Posted by: Chronicpain September 3, 2019, 7:08 PM
Did you need meds when you due the slow taper?

Posted by: Overfifty55 September 4, 2019, 9:54 AM
Good morning Chronicpain:). Yes I did use meds when I jumped. I also smoked marijuana during this time too. I didn’t do it all natural.

Posted by: Chronicpain September 4, 2019, 4:31 PM
Do you think staying at 1mg per day (7mg per week) for a few weeks and then dropping even further (6mg per week, 5mg per week, etc) would be a soft landing without any meds?

I have the time, though not sure about the patience.

Posted by: Overfifty55 September 4, 2019, 8:28 PM
Oh yeah that would work IMO. That’s a great taper plan Chronicpain.

Posted by: Chronicpain September 5, 2019, 9:01 AM
Thanks.

I’m now right in 1mg per day. I hope to stay here for a few weeks but I am impatient. I can break tablets down to what appears to be .5 mg.

The fear for me is what happens 3-4 days after the final jump. 15+ years is a long time.

Posted by: Overfifty55 September 5, 2019, 10:03 AM
Good morning Chronicpain:). You can do this and you’ll do fine. Your low enough that even now jumping is doable. The longer you taper the better and that’s what you’ve been doing. Don’t stress your doing great. Can you talk with your doctor about your concerns about jumping? Don’t be afraid to jump you can do this. Take one day at a time. Each day you get a little stronger on less methadone. Until you don’t need it. Do you have support? Not going through this alone helps too.............

Posted by: Chronicpain September 5, 2019, 10:18 AM
At 40 mg the doc said stopping was easy —- I learned that she knows nothing about it.

She’s very unhealthy and here inn Florida, quite a few look healthy. Switching docs isn’t easy.


Posted by: Overfifty55 September 6, 2019, 10:40 AM
Good morning Chronicpain:). Ya switching doctors isn’t easy. I find a lot of doctors don’t know that much about withdrawals from methadone. Or they simply don’t care. At least we know now how the doctors are regarding this. That way we don’t ever have to go through it again. You are doing everything you can each day. Giving yourself time in between drops and letting the body stabilize is what I did too. Your doing awesome. Have a wonderful Friday............peace

Posted by: Chronicpain September 6, 2019, 12:25 PM
Thanks!

Another reminder of not wanting dependency—-

Rx filled 48 hours after due. Had I not tapered, I would have been suffering.

Office blamed pharmacy
Pharmacy blamed office.


I did the monthly stress & anxiety thing for too many years.

Posted by: Chronicpain September 8, 2019, 4:18 PM
Day 5 of 1.25 mg

Fatigue —

Some sneezing

Rough stomach —cramps and constantly going.

Took 12 year old child dose of Imodium today after not having had any in 4 days.

I do wonder if I’m feeling like this dropping from 2mg to 1.25 if I should jump off abs get it over with, or stay at 1.25 mg until I stabilize.

Posted by: Overfifty55 September 9, 2019, 9:34 AM
Good morning Chronicpain:). How are you this morning? Imodium is a great med to utilize while withdrawing. IMO. That’s what my doctor gave me too. I was taking 2.5 ml approximately and dropped to 1 ml for a couple days and jumped. I would of dropped and continued to take methadone if it were available that’s just me. Whether that low of a dose helps or not wasn’t the point for me. It helped me mentally and that’s a big plus when reducing my anxiety. I really had an easy time at the end and I believe it’s possible if you taper slowly. That’s what you’ve done too. Your in a good place. Just take baby steps and celebrate daily how far you’ve come. Before you know it you’ll make that jump.......Have a beautiful day.......peace

Posted by: Chronicpain September 9, 2019, 11:59 AM
Better this morning. Yesterday the stomach cramps were very rough. I was out and thought I was beyond it but had to rush home.


I’ve gone from decades of blind faith to not wanting anything to slow down my health.

Do you think Imodium slows down the healing of the stomach (gut bacteria, etc)

I was going on the hour yesterday for 12 hours even after using child dose.

Today I had my 1mg (it’s a tiny bit smaller than the 1.25mg tablet) and my stomach isn’t as bad. No Imodium today.

I’ve wanted to jump off now but yesterday convinced me to first stabilize at this level first.

I’m eating well and walking which helps with the fatigue.

Thanks for Checking in with me

Posted by: Chronicpain September 13, 2019, 7:06 AM
Update — after stomach cramping Sunday, I became impatient and jumped off this week.

48 hours now with no methadone.

Last night slept 4 hours —wide awake at 1am and very itchy.

Fell back asleep with broken sleep 3am -5am but itchy gone.

I don’t stress on the insomnia. It will resolve & I don’t trust any medicines that target the brain. I

Feeling good this morning. Stomach not too bad.

Being on high fat diet, I can always fast.

The challenge for me is all the horror stories about half life withdrawals on days 4 and 5.

Day 6 I have to fly (lengthy) & need to be ok to stay seated for 6+ hours.

Posted by: Chronicpain September 14, 2019, 4:53 AM
72 hours since last dose.

Fell asleep 8:30pm and woke up at 1:30am. I’m grateful for the sleep.

This begins Day 3 today. Admittedly nervous about Days 3-5 from everything I’ve read.

Day 2 I walked twice, lifted weights for a few minutes & dealt with stomach issues with 1:2 dose of Imodium.

This morning I am hungry. I think it’s s good sign.

Without inflammation from high glucose diet, this seems so much easier than what would have been on sugar.

Posted by: Chronicpain September 15, 2019, 7:44 AM
96 hours since last dose.

Feeling...good.

Stomach seems better.

Some energy downtimes but only lasted an hour or so.
Sneezing during the day continues. Histamine healing?

Runny eyes, congestion only last 60 minutes or so.

Sleep: 8pm to 12:30am. Wide awake from 12:30-2am but fell back asleep till almost 5:30am!

I wonder with the very slow taper and dropping of sugar for the last 90 days...

Have I dodged a bullet?

Posted by: Chronicpain September 16, 2019, 5:56 AM
Sun in Florida is nice.

120 hours since last dose of 1mg.

I feel very good this morning.

I fell asleep at 8pm. I woke up at 11:55pm thinking it was morning.

I refused to get upset. Eventually I fell back asleep till 4am.

This has been relatively easy thus far. Sneezing, running eyes cones & goes as does fatigue.

I want healing so I am not using any sleep aids. I’m not allowing any drug to impact my brain. I don’t judge those that do...if there’s any place for compassion, it should be here. It’s just that after diet change, especially sugar and processed food dropping, I don’t trust drugs nor doctors pushing them.

I believe chronic inflammation is behind the epidemic of pain patients, depression and anxiety that prior generations did not see in such extreme percentages as we do. This includes children who struggle to concentrate.

I dismissed this, year’s ago but once I experienced it there’s no turning back.

Stomach yesterday wasn’t great but improving. I used a single child dose of Imodium which helped.

Posted by: Chronicpain September 18, 2019, 6:58 AM
Day 6. Stomach & insomnia. Business Travel day so I fasted & it was better.

Exhausted, I slept 5.5 straight hours.

I traveled for the first time in 15 years without the anxiety of meds—-no fear of losing them —what a feeling.

This has been way easier than I feared. Long slow taper —it works.

Posted by: Chronicpain September 18, 2019, 7:01 AM
Day 7

I woke up feeling great. (5.5 straight hours sleep as posted above) and just a few sneezes.

From trading so much over the past few years, I keep waiting for trouble that doesn’t come. I am convinced that slow taper and NO bodily inflammation is winning combination.

The issue of needing Imodium continues.

Posted by: Mojo1 September 19, 2019, 12:44 PM
Chronicpain, great job hang in there, keep exercising and drink lots of water. You can do this!!!

Posted by: Chronicpain September 20, 2019, 7:31 AM
It’s been crazy easy. Fear kept me on it for so long.

I’m now in competitive sports, eating well, and not stressing over insomnia. It’ll resolve naturally.


This is Day 9.

6 hours of sleep!

I feel great

God has been merciful to me.

Posted by: Chronicpain September 23, 2019, 5:54 AM
Day 10. Good day but increase in sneezing

Day 11.

Strange — I thought I caught a cold but it was preceded by lots of sneezing. Very congested & taking bone broth. Still need Imodium

This is the first day I took Advil. Aches legs but not too bad.

Fatigue today after several days of energy.

Bad dreams last night & insomnia. I have expected both.

I like the emotionalism that increases but the bad dreams or night terrors mean waking up with pounding heart. It helps that I’ve read about them and wasn’t caught off guard.

Very congested but I am determined to not take antihistamine as the histamines need to heal. I don’t want to delay healing.

Rather than stress, I made coffee at 3am.

I’ll cope.

Re-read Over55, Random & Mojo for inspiration.

Posted by: Chronicpain September 24, 2019, 5:09 AM
Day 12

Quite sick today with what I thought was a cold.

It’s like a cold on steroids.

Flowing incessant congestion, sore throat & chest.

Fatigue. Low grade fever.

It’s like no cold I’ve ever gotten.

I’m not taking anything (except bone broth) for fear of interfering with the healing process.


I’ve read that others got a “cold” during a similar post methadone period.

Any thoughts?

Posted by: Chronicpain September 25, 2019, 5:38 AM
Day 13. It must be an ugly cold.

Congestion, dry cough and sore throat.

Energy returned though with the constant running nose I didn’t exercise.

Last night I slept 8pm yo midnight and then 1am to 3:30am, though broken. I’m grateful for the sleep. No nightmares last night.

Sneezing is constant but is it the cold exasperated by histamine recovery?

I’m healing from the many years of this stuff.

The Florida sun is always welcome.

Posted by: Mojo1 September 25, 2019, 3:31 PM
Keep it up I promise all this cold mess passes and that part is over with, hot bath will help with aches. Drink lots of water and exercise when you can!!

Jesus is great and mighty!!!

Posted by: Chronicpain September 25, 2019, 5:34 PM
I don’t know how people survive without faith in Christ.

Especially as we get older. I think lots of us who’ve suffered in this way are also nostalgic & think about “what’s next?” after this life.

Thanks, Mojo.

Posted by: Chronicpain September 26, 2019, 6:40 AM
Day 14

This cold is the worst I’ve ever experienced. I finally broke down and used cold meds. Incessant cough, congestion and fatigue.

I’ve read about the vulnerable stage post methadone but hoped to avoid it.

Lots of bone broth. Yesterday was the first day I missed work —I went thru methadone withdrawals without missing tine! Yet a cold knocks me out?

I’m continuing bone broth.

Something else I want to share by way of encouragement.

Methadone is fat soluble—that is, it gets stored in fat cells (bone marrow storage??)

I did a very slow taper (in hindsight, I would have gone even slower!) yet when I started, I also dropped sugar, white flour, processed foods etc. I was a bit frightened but I embraced a high natural fat diet.

I lost more than 50 lbs and experienced many health benefits.

No longer having chronic pain (including arthritis) made the detox much easier.

I’ve since read others who found the same.

The “glucose rollercoaster” is a wild ride I’m glad to be off.

While beginning the taper, think of dropping sugars.

Posted by: Chronicpain September 27, 2019, 5:53 AM
Day 15.

Using cold medicine helped get through the day. It’s difficult to distinguish between W/D and a rough cold.

Sleep remains broken but I’m grateful for what I get. 4 straight hours followed by a series of 3 broken hours. Healing will take time and I’m not stressed by this.

Stomach—using single half dose of Imodium every other day. Not a fan of going to the bathroom repeatedly but this will heal.

I thank God for the slow taper. Reading horror stories of cold turkey—including those who had prescribing doctors retire or clinics suddenly close is reason enough to taper.

Jumping off at 1mg is so relatively easy.


Posted by: Chronicpain September 28, 2019, 6:22 AM
Day 16. The cold is finally easing. I feel better today and think that it’s been the heavy cold that’s taken it’s toll rather than W/D.

I had better energy until late afternoon. I’m a bit concerned about sports next week.

Florida Soccer—adult league very competitive. I’m the oldest on the team. I hadn’t planned on jumping when I did —but the fear of the unknown got to me. Had I known that it could be this easy I wouldn’t had the anxiety.

I am still in need of 1 dose (2mg) of Imodium which concerns me. I’ve read horror stories of withdrawal from it being worse than opioids. These stories are about people taking 20 times the dosage, yet still...

I’m hoping stomach will clear up.

Other than that, I continue to be surprised how easy this can be with slow taper.

Posted by: Overfifty55 September 28, 2019, 9:57 AM
Good morning Chronicpain:). Your doing amazing!!! Congratulations on being methadone free. I’m glad your starting to feel better being sick isn’t fun. Have a beautiful Saturday.........peace

Posted by: Chronicpain September 29, 2019, 8:50 AM
Day 17

Vitality increasing. Fatigue not hitting until later in the day.

Cold lingers but is not as intense.

I’ve missed a week of exercising but mental clarity continues to improve off methadone. The ability to experience Ed increased emotion is thrilling. It’s life.

Still going the bathroom 4 x per day and sleep healing is slow. I used NyQuil twice for the cold/-both times it increased insomnia.

Insomnia will resolve on its own time frame. I’ll be grateful for whatever sleep I’m afforded.

Posted by: Chronicpain September 30, 2019, 5:01 AM
Day 18

Continue to improve. Wondering about PAWS & stomach.

I am using 1 to 2 mg of loperamide about every day. I’ve noted that I feel better, overall, a few hours after using it.

This concerns me.

Prior to recently reading about it, I didn’t know it was addictive & dangerous!

Day 18 I didn’t take it and I felt it’s absence. Stomach was tougher and I felt edgy.

I recognize that one could argue that loperamide addiction comes from 60mg to 200 mg but I’ve been using it, even at such a low dose, that I’m relying on it.

I didn’t take it Day 18 & noticed it. I woke up Day 19 (this am) and feel much better.

I’m not going to take it today either. I’ll save it, if necessary, for travel. Hopefully I should start healing.

Broken sleep 8:30pm to 2:30 am but I refuse to stress over it.

14 or 15 years, my body depended upon this drug so it’ll take time to heal.

It’ll be fine.

Posted by: Chronicpain October 1, 2019, 7:03 AM
Day 19

Doing ok. I hope this helps others.

PAWS in small impact —

Ache in hands & legs. No Tylenol.
Fatigue in late afternoon.

Slept 4 hours, up for 2, and back for one more. Woke up once overheating.

Stomach (going too often) continues but I did not use Imodium again. It frightens me. Using it (2mg) means about 2 hours later feeling better in my stomach but also mood. I believe it postponed healing. I understand why it’s used & don’t judge anyone—especially l cold turkey. Be careful with any & everything.

We’ve come to accept, perhaps to our harm, that a pill can fix anything. We put so many chemicals in our bodies and on our bodies. I consider how many friends & relatives have cancer.

I spoke with a woman who was on low dose for medical condition for about two years. (5mg)

She tapered and found residual PAWS, depression & ache for about 90 days.

It is a powerful drug.

Posted by: Chronicpain October 2, 2019, 4:58 AM
Day 20

The “cold” continues with a dry hacking cough. I’ve never had a cold last 10 days before. The cough, like the sneezes, has left me sore beneath my rib cage.

4 hours sleep

PAWS ache at night but nothing I can’t handle.

Time is needed.

I played soccer & exhausted myself last night. The cold has interfered with exercise so it was good to get back in.

Stomach was better! 3rd day without loperamide —-rate good day. I hope this progress continues.

Posted by: Chronicpain October 3, 2019, 5:22 AM
Day 21

PAWS

4 hours sleep woke to the worst diarrhea of the detox. No change in diet. I wonder if it is related to not taking loperamide in the last few days? I stayed hydrated all day.

Body aches —by 4pm I gave in and took two Advil. Mild depression/irritability by afternoon.

Then I fell asleep by 8:30pm and didn’t fully wake up until 3:30sm! Best sleep in a long time! I thank God.

The PAWS in manageable as it is not all day but cones and goes.

My brain-gut must fire on its own now. This is natural to healing and I don’t want anything to interfere with it.

This morning having my coffee at 4:30am, I feel great. It may not last all day but I know I’m improving and remain grateful.

Posted by: Chronicpain October 4, 2019, 4:33 AM
Day 22

Cold & cough improving. Finally.

I’ve done some research on methadone detox and compromised immunity as the brain must relearn.

I did not fill my prescription yesterday for the first time in almost 15 years. It was great not to have that anxiety.

A much improved day. Less fatigue and a good stomach. No Imodium. That stuff scares me. No Advil, either.

I slept for 6 hours and am pleased. Mild depression but I believe it’s related to PAWS.

I think I may be pulling out of PAWS and into healing!


Posted by: Chronicpain October 5, 2019, 5:19 AM
Day 23

A good day with much improvement!

Cough dry and congestion improving.

6 hours sleep!

Stomach better.

Emotions alive.

Grateful!

Posted by: Chronicpain October 6, 2019, 9:47 AM
Day 24

Another good day.

However...

I celebrated my 6 1/2 hours of sleep and good stomach with...

Wine

Popcorn.

Wine is something I’ve not enjoyed due to the methadone.

Well, it disrupted my sleep (3 hours) and the popcorn tore up my stomach.

Lesson learned. (I think).

I’ve read to avoid alcohol during methadone detox.

I hope someone reads this and avoids the errors.

Posted by: Chronicpain October 7, 2019, 5:51 AM
Day 25

Healing.

Sneezing is down to 6x per day or so. Histamine (brain) resolving.

The cold/cough is almost resolved. Learning lots about the compromised immune system under methadone as well as memory loss and emotion suppression (methadone’s impact on the brain). Returning emotions!

Slept 6.25 hours. Progress! Bad dreams fading.

Stomach better.

Freedom.

Considering freedom from methadone? Taper. Taper slowly.

Florida sun for vitamin D!


Posted by: Chronicpain October 8, 2019, 2:19 PM
Day 26

The return of stomach woe!

Other than that, I also 6 hours, but fell back asleep for an additional 1.5!!

Fatigue, watery eyes in afternoon but had soccer match at night and felt great.

The shotgun sneezing seemed to pull a rib cage muscle and s collision in play made it worse.

No meds for pain!

I’ll take the aches and pains of sports injuries over th deadness of methadone.

No return of chronic pain. Cutting sugars really worked!

Posted by: Chronicpain October 9, 2019, 6:07 AM
Day 26. A good day.

Coughing less.

Sneezing maybe 6 times total.

Slept 8am to 3am and 3:30-5am. Had unintended 30 min nap at 5:30pm.

Each day seems to get better.

Pulled muscle beneath rib cage from shotgun sneezing/coughing aggravated by belly laughs!

Hoping that even chronic pain patients give getting off methadone a try. I agree with those who stated that methadone made things worse.

Posted by: Overfifty55 October 9, 2019, 8:02 AM
Good morning Chronicpain:). I can’t believe it’s already been 26 days. Your an inspiration to follow. Your positive energy shines through your posts. You’ve got this I just wanted to high five you..........Have a beautiful Wednesday...................peace

Posted by: Mojo1 October 10, 2019, 8:49 PM
Chronicpain getting to day 26 is awesome, just continue to take one day at a time. You are doing great!!!!!!!!!

Posted by: Chronicpain October 11, 2019, 10:37 AM
Thank you for the encouraging words.

I’m usually good with math, but missed this dating—

Today is 30 days.

Yesterday I destroyed the man pills & broken pills I had from my long taper. The strange diet resolved pain I’ve dealt with for 21+ years.


Posted by: Chronicpain October 12, 2019, 7:48 AM
Day 31

Sleep broken but accumulating. I woke up feeling great.

I still have the cold/cough though much improved. The research has been reassuring that post methadone a compromised immune system means vulnerability. Treating with bone broth.

I’ve also considered that dropping sugar did more to spare me withdrawal pains than I may grasp.

1. Inflammation. With bodily inflammation gone, arthritis & body ache resolved. I cringe when I read “use Gatorade for electrolytes” wondering if readers know this is not the Gatorade of yesteryear but bought out & now a high sugar drink.

2. Body fat loss during taper.

Methadone stores in fat (and possibly bone). Having dropped a lot of weight from healthy fats low carb (sugars) I cannot help but think this would have been difficult with excess body fat—-particularly after 14 years.

Florida sun for vitamin D no longer brings sunburn while having no inflammation. It’s the first time in my life I’ve not used sunblock. I think our terrible diet has produced the need for sunblock.

Posted by: Chronicpain October 13, 2019, 6:19 AM
Day 32

I’ve noted an improvement in mood with sleep.

It is still broken sleep but I’m grateful for any. I’m finding that if I awake after 3 hours, I don’t stress about it and fall back asleep.

I am letting my brain heal naturally.

I don’t condemn anyone who uses anything to help them. It’s a personal choice for me & through many months of research, I have strong doubts on any drugs that impact the brain. It’s scary to hear a drug be praised & prescribed only to eventually have it recalled.

I’m relying on nutrition & exercise —-

I also note how it feels like a fog is being lifted that existed on methadone. Emotion increase and I’m hopeful for intellectual —especially memory. I’ve long experienced memory lapses on methadone.

Another blessing—

I’ve always experienced anxiety when considering that my doctor may leave the practice or another gov’t regulation will ensue —along with the ugly experiences over the years where the doctor was late renewing the script...calling several times to the office.

I know it’s not the daily “liquid handcuffs” anxiety but as the years passed, I hated it. It was a monthly “handcuff” that ate away at me.
I’m free from it.

In pain management forums, posters suffer from being dropped or losing their doctor or other such trials. I feel for them.


Freedom.

I wish this for others!

Posted by: Chronicpain October 16, 2019, 4:52 AM
Day 35

I slept 7 hours straight for the first time since the taper began (1 year).

I am grateful.

The cough continues. My understanding is that opiates act as a cough suppressive therefore the re-learning, much like sneezing takes place.

9 shotgun sneezes one day and none yesterday. My rib cage still hurts from the heavy sneezing and the cough. The muscle strain is likely to heal with the resolution of sneezing & cough.

Stomach now has more days without issue than with. Healing.

I injured my hamstring in soccer and now hobbling around in pain. I am grateful for a kind Providence Who has reminded me of my blessed dependence upon Him.


Posted by: Chronicpain October 24, 2019, 12:18 PM
Day 42

For the last 7 days, I’ve experienced PAWS.

Depression, moody, fatigue and the stomach still needs resolution. Going to the bathroom 6x per day.

I am glad I read up on PAWS.

The dry hacking cough lingers but is better. It’s almost over, I think. Methadone (opioids) is a natural cough suppressant so it’s something else I was able to read up on & not be surprised.

Sneezing down too.

Pressing on...

Posted by: Chronicpain October 26, 2019, 7:54 AM
Day 44

Some respite from paws.

Cough is minimal and chest soreness much less.

Slept 5.5 hours & then another hour or so.

Fatigue & mild depression better.

I helped stomach with 18 hour fast.


Posted by: Overfifty55 November 5, 2019, 8:38 AM
Good morning Chronicpain:). Wanted to say hi and wish you well. 😀

Posted by: Chronicpain November 6, 2019, 7:40 AM
Thank you. I hope you are well.

Day 56

PAWS has been surprisingly rough the past week. Stomach, insomnia & mild depression. First MD appt. doctor said the PAWS was normal. No comfort meds requested.

Stomach is difficult —I’ve read that some cleared up at 5 or 6 months. Dr said it’ll recover.

I press on.

Posted by: Chronicpain November 9, 2019, 7:24 PM
Day 60

PAWS continues but—

Sleep in improving. I go 3-4 hours until wake up, but the difference is I do fall back asleep. I am grateful to God for each little move forward.

Stomac-still going a lot. It’s a struggle.

Energy better

Cough all but gone.

Sneezing down to perhaps 3-4 per day.

Irregular heart beat seems resolved.

I’m taking 2mg of loperamide 3 days per week. It scares me but using the bathroom this often has led to a new & painful condition. It hurts to sit down.

Doc warned me about memory lapses during PAWS. He said it comes and goes but eventually resolves.

I’ve re-read J-Dave’s diary. He suffered a lot from PAWS. I hope he’s ok.

Methadone is a scary powerful drug. I’ve learned a lot more about the damage it does.

I’m glad I got rid of all those extra pills from the year taper. I don’t wish this upon anyone.

Pressing on.

Posted by: Mojo1 November 9, 2019, 9:09 PM
Chronicpain congratulations on day 60!!! I promise it get better just continue to take one day at a time.

Posted by: Chronicpain November 11, 2019, 7:41 AM
Thanks, Mojo.

I’m seeking to learn lessons of patience & trust in God’s wisdom.

Last night 6.5 hours sound sleep! Then another hour in and out, which has me up refreshed today.

The stomach issues has me doing more intermittent fasting which is good for my overall health.

I am wondering if a several day fast would help the resetting of the brain-stomach control?


Posted by: NyToFlorida November 15, 2019, 12:44 AM
Congrat's at getting off methadone!

check out vegan athletes documentary on Netflix. eliminating animal products might give you a boost.

there are many ways to fast. I'm sure you can find something that fits your routine.

You could intermittently fast and make your window of eating smaller each week. down to where you are eating one meal a day. or fast every other day or 36 hours every third day. you can vary the fast to fit your life.

after the fast ease into eating by starting w a light, vegan meal. that is also a good time to test a food if you think a food is causing you stomach issues.

happy fasting!

another good thing about fasting is that you don't have to waste time figuring out what to eat or going to the store. your grocery bill will decrease!


Posted by: Overfifty55 November 17, 2019, 11:41 PM
Good evening randomperson:). It was so nice hearing from you. Congratulations on your CR commitment it’s awesome. I’m doing good thank you for asking. How’s things with you? Can you believe it 2 years and 3 years without methadone.Woo hoo we are rockstars. Anyways gonna watch Poldark so I have to cut this short. Have a beautiful week...............gobble gobble.........peace

Posted by: Overfifty55 November 17, 2019, 11:43 PM
I posted on the wrong thread....sorry. How are you doing Chronicpain? Anyways sorry for the post.

Posted by: Chronicpain November 19, 2019, 7:54 AM
Day 70

I am well, and am grateful for the inquiries.

PAWS depression seems about over.

I’ve been discouraged over my stomach and have been taking 2mg (single pill) of loperamide —I am concerned about this.

The high healthy (natural) fats have allowed me to fast, which has helped my stomach the past five days. I am starting the light exercise & believe when stomach is normalized, I can increase exercise.

The chronic pain is resolved.

The inflammation was the source.

Almost 15 years on methadone —it takes time to heal but improvement is steady.

Dry cough is gone.
Muscle pull from cough & sneezing resolved. (That was painful!)

Sneezing seems less.

Energy improving.

Insomnia slow improvement. The sleep is still broken but...
Rather than waking wide eyed, I’m falling back to sleep. I go for 4-6 hours straight, and now repeated sleep over the last few hours. It’s an improvement.

I look forward to 90 day mark as others have written about the decline of PAWS at this mark as the body produces increased endorphins.

I hope all are well.

Posted by: Chronicpain November 27, 2019, 8:54 AM
Day 77

I am thankful to be out of chronic pain & off all medicines including methadone.

PAWS tests my patience but I know, and I remind myself, that all things work together for the good.

I am grateful for the testimonies found here.

It matters not if one became addicted through abuse or chronic pain—-the results are the same.

The accounts of victory here are inspirational.

Happy Thanksgiving to all.

Posted by: Chronicpain November 30, 2019, 1:18 PM
Day 80

I hope all had a wonderful Thanksgiving!

Those who are thankful in life are the happiest. I wish this for all.

Sleep may be improving. 6.5 hours plus another 1.5 broken. This is improvement.

Chronic pain interest——

So, I had white flour & sugar treats, in large quantity for Thanksgiving. Plus, I was the “tester” for several days prior.

Aches & pains made a comeback. Inflammation is very powerful.

I treated w Advil and a few days without the white flour & sugars and I’ll be fine. It’s a good reminder.

Lots begin with quitting sodas and see insulin fall and weight loss and so on.

Stomach —-still 2mg per day of Imodium but I am now able to skip a day here and there.

It’s progress.

Blessings to all!

Posted by: Jet0912 December 1, 2019, 7:54 PM
Hi, you are an absolute inspiration for me. My son has been off Heroin for some months now and we have been doing a slow taper off Methadone at a rate of 1ml less every week.

My theory on this was that if the taper is slow enough the body will adapt. My son has reduced his methadone by 20% and says he doesnt feel any different and if anything is happier now than he was.

We can see he looks much healthier.

At this rate it will take him about a further year to reduce to zero but i am convinced a slow taper has to be the best way. I am sure thats why rehab isnt always successful; its too short a duration and few could afford 2 years in rehab.

By far the biggest struggle at first was persuading my son he would not go into withdrawals. In actual fact we reduced by just 1/2 ml for the first couple of weeks to show he would be ok.

Reading your post convinces me i was right to persuade my son to go the slow taper route.

Posted by: Chronicpain December 3, 2019, 5:23 AM
Awesome, Jet!

It’s life, not a race.

Going slowly is, from studies, the best result for success.

I liken withdrawal to this huge ugly debt to be paid by the brain deprived of its exogenous opiate.

Cold Turkey means a huge payment that most cannot abide.

Slow taper?

You rarely miss the money —month by month.

When the jump is made, it is as if little, if any, was due.

Cutting sugar & processed foods was so helpful!

God bless your son’s commitment!

Posted by: NyToFlorida December 3, 2019, 11:48 PM
Hello Jet!
I remember your posts from a while ago. Congratulations to you and your son for Not Giving UP! I am thankful your son has been able to trust you and the 'process' that is needed to put active addiction in remission. If the methadone keeps him clean and a little happier, a two year break in addiction sounds like a welcome alternative. I agree, time is needed to adjust from addiction life to clean life.


Posted by: Chronicpain December 6, 2019, 8:23 AM
Day 85

4 straight days without stomach issue. Am I through it? I hope so. No loperamide 7 days now. (Was using 2mg per day).

This is the longest reprieve from stomach issues in months.

It’s been helpful to read success stories dealing with PAWS. Being mentally prepared but also affirmation that it’s not unusual and it passes.

Sleep 5-6 hours but sometimes I can fall back to sleep. I am grateful for what I get.

Another interesting issue—-I got a cold again (school) —-this time it’s a normal cold whereas previously it was the longest and most intense I’ve ever experienced. This led to research where others have had immunity issues shortly after being off methadone.

Yet another reason to seek freedom from it.

Posted by: Chronicpain December 10, 2019, 7:13 AM
Day 90

I’ve had much improved stomach for 8 days now.

Sleep broken but with slight improvements.

Sneezing less.

Recap —very slow taper, easy to jump of low dose.

Later, surprised a bit by PAWS, but nothing compared to the fears of withdrawal.


Posted by: Chronicpain December 15, 2019, 8:12 AM
Day 95

It seems like 90 days was a real turning point for PAWS.

Slept 6.5 hours
Stomach better
Energy lags seem less & less

I’d say “I’m feeling like myself” but after 15 years on methadone , I’m having the exciting journey of discovery.

Posted by: Mojo1 December 15, 2019, 8:49 AM
Chronicpain - wow day 95 is great and ya I think looking back around the 3 month mark was a breakthrough for me as well. This week was 4 Years and 4 months for me and I was telling someone how I was so thanks to be off methadone.

I can't wait to hear from you at your 6 month journey. Please keep it up because things continue to get better!!

Posted by: JD 50's January 30, 2020, 6:05 PM
Hi and congratulations. I'm day 11 and thank you for reminding me of the sugar issue. This is my third time doing this and caught myself repeatedly saying lately after a coffee with a half sugar in "that's just inflamed my symptoms" yet i still do it , but there ya go.
First time i tried in my late teens failed due to Paws after a month. Stayed on maintenance until second attempt lasted six years. Third time I was living on fruit water and organic veggies months prior and dropped rapidly from 16ml to less than 1mg and did it with ease and had the feel good from get go, lasted 8yrs. Gradually my old diet slipped back and probably why I went back on it. Still not sure what I was thinking to be honest, just went to the doc and asked for it back.
So this is actually my fourth time not third, and as i said this is day 11 without any.
I knew to do the slooow taper knew to drink water and eat good food, while not painless this time still very mild. Touch of stomach bubbling, one night slight kicky, but slept for a few hours every night; average about five hours.
Thanks again for the sugar reminder and hopefully all is still well.Well done and your post like many others on here is great info and works, good people round you is also needed i'd imagine as well as utilising the wisdom posted on this site.
I don't really post on the net but will pop back in a cpl months to check in and add my success update,just for anybody else who has fears of stepping off in the future.
Regards n Thanks, great site




Posted by: JD February 15, 2020, 9:13 PM
Hi hope everyone good. It will be a month tomorrow and no pain. The odd twinge but if I had to spend the rest of my life as now it would be no big deal. Almost everything back to normal so this will be the only update. The plan the main poster here used is by far the easiest way to do it,so get the lifestyle/diet changes done long before you ease off and it's not that bad.
Before I sign off i must say the amounts you take in the US is mind boggling, unless it's different strength to the UK it makes no sense. If it is liquid 1/1 methadone nobody needs hundreds and hundreds of ml no matter the habit. Unless I'm missing something which maybe the case. Anyway good luck to those that have and to those that are going to do it. You got this 8)
Regards and be kind to yourselves. Thanks again great site

Posted by: Mojo1 February 18, 2020, 10:09 PM
Hey everyone I am just checking in. It is great to see so many people getting off methadone and living an awesome life. For people reading this just know that it can be done and there is victory.

When I first got on the site the people encouraged me to stay focused and it does get better day by day. That was all so true it does get better as each day passes. Just take one day at a time!!